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Consent Information for Research with Children and Young People .

Given the increased awareness of ethical requirements when undertaking research with children and young people, and the importance of gaining informed consent directly from all research participants, this page provides examples of information sheets and consent forms developed by staff in Moray House School of Education.

The following provides a definition of 'informed consent':

The principle of informed consent is, essentially, an expression of the belief in the need for truthful and respectful exchanges between researchers and the people they study. Studies involving human participants should be based as far as possible on the freely given informed consent of participants. There are three steps in the consent process, giving information, obtaining freely given consent and documenting how consent was obtained. Researchers should be aware that consent in many studies will be a process and may require negotiation over time.

(See University of Melbourne)

It is now desirable research practice that informed consent should be actively sought from children and researchers should use methods of communication that help promote their comprehension. The examples below illustrate that a variety of formats are acceptable and that user-friendly language is effective, as is the use of visual imagery and illustration.

All the examples address key areas, providing a jargon-free description of the research, why it is important, and what taking part involves; they also provide contact information on the researchers and the organization they represent, on how the data provided by participants will be used, on confidentiality, and on how feedback on study findings can be obtained. It is important to emphasise that participation is voluntary and that the child or young person can withdraw from the study at any time, without having to give an explanation for doing so.

 

Grades of Ethical Approval


Level 1: ('straightforward') consent information:


Level 2: (may include novel procedures and atypical groups):


Level 3: (potentially problematic):


Also available are:

Ethical Guidelines for Research with Children

Note: Some of the links above are Adobe Acrobat files Adobe Acrobat file. What is this?


 

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